Every month, my church publishes a magazine called the Ensign. I was so excited to see that there was an article about infertility featured in the April issue, so I thought I would share it here. I liked how the article talked to real couples who shared their feelings and that they didn't all have these miracle endings where they magically got pregnant and never had a hard time again. The information they presented was real, and it is nice to know that my church is aware of this problem and wants to be supportive.
Here is a copy of the article. You can also check it out at this link.
Infertility can be heartbreaking. Four couples share how they maintained faith and hope.
Infertility: it was the last thing Brenda Horrocks ever expected to hear from her doctor. She and her husband, Brad, had been married for four years, and although she had experienced complications with her menstrual cycle from the time she was a teenager, doctors had told her and Brad that with “a little help,” they would be able to have a baby. “A little help turned into a lot of help,” Brenda says, and after multiple fertility treatments over several years, the Horrockses were told that the likelihood of their being able to conceive was extremely small.
Infertility is not uncommon—some 15 percent of couples in the United States have difficulty conceiving a child; 1 other countries throughout the world show similar figures. In 40 percent of instances, the wife is infertile. In another 40 percent, the problem rests with the husband. In 10 percent of cases, both are infertile, and in the remaining 10 percent, the cause is unknown. 2 In the context of the Church, where the family is celebrated as the fundamental unit of society, 3 not having children can be an especially difficult challenge.
Yet as Brad and Brenda and many others can attest, God does not leave His children alone in their trials. “Never give up,” Brad recommends. “There’s always hope. Heavenly Father always has something in store for us. We have found that over and over again.”
Here, the Horrockses and three other couples who have dealt with the challenges of infertility—Dave and Angie Belnap, Phil and Valerie Hochheiser, and Curtis and Melody Linton—share how they saw the Lord’s hand guiding them through their challenges.
Dealing with Grief
Brenda’s grief at the diagnosis was so overwhelming that she began questioning her mission in life, she says.
“I felt lost for a long time. I felt I had no purpose. That’s the ultimate goal, isn’t it, to get married and have a family? I still knew I was a daughter of God, but I hated that I couldn’t be a co-creator with Him. I felt broken, like I wasn’t a real woman.”
Brenda tried “swimming through” her grief for several months and even years. At one point, it became so severe that she felt prompted to seek professional counseling.
“I realized the grief was inhibiting my progression,” she says. She asked Heavenly Father to guide her in a search for the right counselor and began meeting with one who was able to offer the help Brenda needed.
“As I went to my appointments and continued to do my homework [usually assigned reading], my heart was being prepared for healing,” Brenda recalls. “Many of my fears and pains started to subside, and a new person was emerging.”
Brenda notes that while some well-meaning people tried to assist by suggesting what might be wrong with her or what she could try, that didn’t help. “I just needed people to buoy me up as I struggled and to acknowledge that what I was going through was difficult.”
Angie Belnap and her husband, Dave, learned after four years of marriage that they most likely wouldn’t be able to conceive. Angie recalls going through all of the stages of grief but finding herself returning over and over to the anger stage.
“I remember wondering how something that was so important in life could be denied me,” she says. “My feelings of hurt and what seemed to me to be spiritual abandonment manifested themselves through anger. I was very angry. Angry at myself. Angry at my husband. Angry at God.”
But Angie started working through her grief by focusing on aspects of her life she could control rather than on those she couldn’t. Angie, who worked as a third-grade teacher, looked for ways she could improve her skills at work. She also read a lot—“there was always a book on my nightstand,” she recalls—and pursued other self-improvement projects. “I couldn’t change the infertility, but I could progress in other areas of my life,” she says.
She also found it helpful to keep a journal. “I didn’t always feel that I could talk to people about what I was going through, but I could get my feelings ‘out there’ by writing them down. That helped a lot.”
Debunking Spiritual Myths
Angie’s husband, Dave, grew up with four sisters and two brothers and always expected to have a large family of his own. However, when years passed without any children for him and Angie, Dave began to wonder if it were a consequence of inadequate spirituality.
“We tried to stay positive,” Dave says, “but it was hard. I knew the importance of starting a family, but because we weren’t able to have biological children, I felt like I was being punished or short-changed.”
Like Dave, many people facing infertility look for the reason behind the struggle and sometimes blame themselves. Such thoughts and feelings can sting even more when others make well-intended but hurtful comments, often laced with misguided beliefs.
For instance, Melody Linton recalls sitting in testimony meeting and hearing new mothers say things like, “God trusted me enough to bless me with this baby.”
“I can understand why they said it,” Melody admits. “It’s a fair statement. But in my situation without a child, I couldn’t help but think, ‘God doesn’t trust me.’
“I don’t know that I felt angry at Heavenly Father, but I felt forsaken by Him,” she continues. “I felt so left out. Why were all these other women getting to experience pregnancy? I had tried to live my life worthily and do things I knew to be correct. So why wasn’t it happening for me?”
Eventually, Melody found solace in the writings of Elder Neal A. Maxwell (1926–2004) on adversity.
“The tables turned for me,” she says. “I began to think, ‘Why not me?’ I’m strong enough to handle this.” She knew that with the support of her husband, Curtis, and in the strength of the Lord, she could face her challenges.
Brenda points out that it’s important to continue to trust in the Lord, even when what is happening isn’t what we want. “For a while, I thought if I had enough faith, I would be cured,” she says. “But sometimes having faith means trusting in and listening to the Lord even when we are not cured. What we want won’t always match what He has planned for us.”
She recalls a Sunday School lesson in which a bishopric member shared an important message about faith—one she’s clung to ever since. He said, “When someone has an ailment or an illness and they are healed as the result of a blessing, their faith is being strengthened. But for those who aren’t healed but continue faithful, their faith is being perfected. The first is a faith-promoting experience. The second is faith-perfecting.”
Turning to—Not Away from—Each Other
Infertility can cause a lot of couples to reevaluate their plans for their lives and in some cases, their very relationships. When Curtis and Melody’s doctor suggested a particular fertility treatment—one of their last options—Melody was ready to move ahead, while Curtis had significant reservations. At this crossroads, Curtis recalls, he retreated deeper within himself and escaped by exercising and working more.
Melody, meanwhile, felt stagnant. “While we were trying different procedures, I felt productive and proactive, and that brought a tremendous sense of hope,” she says. “But when we were stalling and nothing was moving forward, that killed me.”
The couple had worked hard for years to encourage each other in their education, careers, and other interests. This had carried over into their infertility challenges as well, such as when Curtis went to doctor appointments with Melody or she supported him as he sought refuge in bike rides and other physical activity.
“Trying to support Melody is what had saved me through all of this,” he says. But as Melody sunk deeper into sadness, Curtis felt powerless in knowing how to help her. They were, it seemed, at an impasse.
That changed, Melody says, when she ultimately realized that they needed to be united as a couple. While she did not share her husband’s reservations about the proposed procedure, she could respect them. “One no meant two no’s,” she says. Together, they began exploring other options.
Phil and Valerie Hochheiser discovered that when the stresses of infertility were too much—especially because, like the Lintons, they came to stages of understanding at different times—they could find relief in focusing on their marriage.
For instance, varying the routine gave the couple something besides fertility testing and treatments to think about. Phil says it was helpful to break away by going to the movies or taking a walk. He and Valerie also “took a couple of trips to put everything behind us for a bit. Otherwise, infertility could have run our days and nights,” he says.
To further strengthen their relationship, the Hochheisers wrote each other notes, went on dates, made anniversaries or other dates special by splurging on a hotel room, made efforts to look attractive for each other, sent flowers, and started saying “I love you” more often. “It’s easy when you’re feeling depressed to let some of these areas slide—or to not try anything at all—but by making a conscious effort, we were able to handle things with a better sense of well-being and unity,” Valerie says.
Physical intimacy also played an important role, Valerie adds. “Intimacy in marriage has several ‘functions’—procreation, yes, but also bonding and unifying a couple in their marriage. Going through infertility reaffirmed in my mind the importance of intimacy in our marriage.”
That stronger marriage, in turn, brought blessings of its own.
“It helped me realize amid a lot of unknowns that I was really blessed to have a husband who is good to me, who loves me, and who was willing to work through this together,” Valerie says. “It didn’t mean that we got rid of the ups and downs. It didn’t mean that there weren’t times that were scary. But we’ve learned so much and grown much closer because of what we’ve been through.”
Serving Others
Phil and Valerie readily acknowledge that it took more than turning toward each other, important as that was. They also needed to turn outward to others in the healing process.
Valerie remembers finding joy in her service in the Young Women organization. Focusing on those she served helped her deal with her own challenges, and occasionally, she even found personal solutions in the process.
“I remember one particular lesson teaching about having an eternal perspective. We discussed how different our own view is from Heavenly Father’s. For some reason, that particular lesson—while I was in the middle of serving others—had a big impact on me. It helped me see a little bit more clearly that my struggles were only temporary ones.”
Phil, too, had significant experiences reaching out to others. He remembers finding—and later sharing—Alma 26:27: “Now when our hearts were depressed, and we were about to turn back, behold, the Lord comforted us, and said: Go amongst thy brethren, the Lamanites, and bear with patience thine afflictions, and I will give unto you success.”
“I identified with the ‘when our hearts were depressed,’ phrase,” says Phil. “Dealing with infertility is such an up-and-down cycle, and you feel that way a lot of the time. But I learned to ‘bear with patience’ my afflictions and, as Ammon and his brethren were instructed to do, serve others. So that’s what we did. We found ways to reach out to others and lift them up. We didn’t yet know what the ‘success’ would be, whether it would be pregnancy or adoption or something else, but we trusted that it would happen.”
Reaching Out to a Support Network
Because of infertility’s personal nature, some couples may decide not to talk about it with other people. The Hochheisers, for instance, waited until Valerie was about to undergo surgery before they brought it up to their families. “
It was hard for my family, my mom in particular, to have not been informed all along,” Valerie recalls. “She felt I hadn’t wanted to include her and let her be my support. But we were struggling to figure things out ourselves. It would have been really hard to answer questions when we weren’t yet sure what we were dealing with.” Moreover, they didn’t want to trouble others with their struggles.
Of course, people handle unexpected situations differently, Phil points out. “Later on, I realized the biggest help was having a strong support group outside of the two of us—people who could see the whole picture, or even someone who had been through what we were experiencing.”
Once they started talking to other people, Valerie and Phil realized they weren’t alone.
“There are people out there; there are support groups, both in person and online,” Phil concludes. “Look for help.”
Curtis and Melody found some of their greatest strength in such support groups, specifically Families Supporting Adoption through LDS Family Services. Although they were nervous about going to their first meeting, when they walked into the room, Melody says, “I saw in every woman’s eyes what I felt in my heart. I felt safe and knew that I could share what I was experiencing.”
“Within the support group,” Curtis adds, “we were Curtis and Melody dealing with this challenge of infertility, not infertility in the form of Curtis and Melody.” That realization, he says, was paramount.
“There’s nothing in the scriptures or anywhere in the gospel that teaches us to suffer in silence,” Curtis continues. “That’s a cultural thing. When you suffer in silence, you suffer more deeply. We went through periods where we were waiting for someone to take the first step to us. Be willing to approach others first. Share your story; you’ll find that others will often open up after that.”
Looking to the Lord
Eventually, the paths of the Belnaps, Hochheisers, Horrockses, and Lintons led them all to adoption. And while their children have brought great joy to each couple, healing, they say, comes from the Lord—not from adopting or conceiving.
“I finally realized that infertility wasn’t a punishment,” Angie says. “Once I was past the point of anger and bitterness, I was willing to hear the Spirit and receive direction about what we were supposed to do. Of course, that comes at different points for everyone. Infertility was my refiner’s fire. My faith was strengthened through those difficult years.”
“I had never really thought about adoption, but when Dave and I had been married almost five years, we moved into a ward where we met a couple who had adopted, and we started asking them questions and learning about the process. In receiving direction from the Lord that adoption was the path we were to pursue, I felt physical and spiritual weights lifted from my shoulders. The realization of God’s plan for our family gave me peace.”
“One of the gospel principles I’ve learned to appreciate through our experience is that Heavenly Father has a plan for each of us,” Dave adds. “Sometimes we get caught up in the one-size-fits-all mentality, and we feel that our lives should look like other people’s lives. But that’s really not true. Everyone has different trials, and Heavenly Father is aware of those. If we are humble enough to follow the plan He has for us, we’ll be happy.”
Valerie Hochheiser agrees that relying on and trusting in the Lord is crucial. “I learned that we had to do everything in our power but then ultimately turn it over to Him,” she says. “Sometimes that means letting Him tell us which direction to go. Other times it’s a matter of choosing a direction and letting Him confirm the decision.
“I think that was part of our learning process,” she continues. “I remember at one point telling Heavenly Father that we no longer knew what to pray for. We could pray for this to work or that to work, but mostly we just wanted to be ready for the blessings that Heavenly Father was ready to send us.”
Seeking Heavenly Father’s comfort and guidance will help us make the best decisions regardless of our circumstances.
“I have learned to trust in Him, to follow the Spirit, and to feel at peace because God’s plan is the one that will benefit me the most,” Brad says. “There’s more to life than we can imagine.”
Brenda agrees. “His gifts are the best gifts,” she says. “He loves us so much. What I would have planned for our life would pale in comparison to what He has given us. We need to trust and know that He will give to us immeasurably. What He has in mind for His children is better than anything we could ever design.”
For additional information on this topic see Ana Nelson Shaw, “Being Sensitive to Couples without Children,” Ensign, Aug. 2000, 61. You can also visit the Counseling and Resources section of ldsfamilyservices.org. For more from each of these couples—and others—on the topic of infertility, and for ideas for friends and family, please visit ensign.lds.org.
“I couldn’t change the infertility, but I could progress in other areas of my life. … I finally realized that infertility wasn’t a punishment. It was my refiner’s fire.” –Angie Belnap
“What I would have planned for our life would pale in comparison to what God has given us. What He has in mind for His children is better than anything we could ever design.” –Brenda Horrocks
Showing posts with label Article. Show all posts
Showing posts with label Article. Show all posts
Friday, April 1, 2011
Wednesday, February 9, 2011
Start Talking About Infertility
I got an e-mail from RESOLVE this morning that had a link to a great article on Infertility that appeared in the Huffington Post today. The article is called "Infertility" The Disease We Need to Start Talking About". I copied and pasted it here:
Silence might be golden in some circumstances, but in the case of infertility it has been downright destructive.
Recently RESOLVE, one of the only organizations dedicated to infertility, made a bold announcement on its website: "People with infertility are being ignored." I always knew that insurance coverage for treatments such as in vitro fertilization (IVF) is scant at best, and that many doctors still don't treat infertility as a major health issue. I've learned that blatant misconceptions persist when it comes to our reproductive health. And it's no secret that the media doesn't cover this subject as often as it should.
However, what I didn't realize is that infertility patients' reluctance to discuss their struggles and advocate for change is directly preventing those affected from getting the support and funding they deserve. As Barbara Collura, executive director of RESOLVE, explains, "Infertility is not being discussed in the general public health realm -- it's not taught in health classes, it's barely touched upon in medical schools, and it's not a priority of any government entity. Yet how can we expect health care providers, educators, our government, and insurance companies to pay attention to infertility when the patients themselves aren't even talking about it?"
Why the silence? People battling infertility are certainly not alone -- a staggering one in eight couples face it -- yet many feel like it is an extremely personal matter not to be shared with anyone but anonymous women and men on message boards. Some say they feel shame for not being able to procreate or for having faulty plumbing, so to speak. Also, in our somewhat still Puritanical society, we've been brought up to believe that sex is a private matter. Discussing it in some circles, even when it pertains to a medical condition, is taboo.
Of course, not everyone feels that way. For instance, while plenty of celebrities would never admit having gone through IVF (even when so many give birth to twins in their 40s), Giuliana Rancic has helped break the mold by publicly sharing her fertility battle via her reality show Giuliana & Bill. "We had signed on to do this show and when we started having trouble getting pregnant, we decided we were going to be honest and reveal what was really going on," says Rancic, who suffered a miscarriage last year after undergoing IVF treatments.
The result of her candidness was both surprising and inspiring. "I started getting up to 100 emails a day from people telling me that I helped them because hearing my story made them feel less alone and ashamed," Rancic explains. "I was shocked by the fact that so many people go through infertility because so few talk about it. And while experiencing it myself has been more difficult than I could have ever imagined, I've found there really is a comfort in numbers."
However, Rancic is still in the minority: It seems that for most men and women facing infertility, it's easier to deal with something so emotionally, physically, and financially draining without having to field questions and opinions from every well-meaning friend, co-worker, or family member. Such comments like "Just go on a vacation, relax, and you'll get pregnant," or "You can always adopt," are far too painful to even acknowledge, so people figure that by remaining silent they'll avoid opening themselves up to such commentary in the first place.
It doesn't help matters that there's no general consensus on how to label infertility. In 2009, the World Health Organization officially defined infertility as a disease. Yet many individuals, organizations, and insurance companies still say that having children is a lifestyle choice and that infertility is not a serious medical issue. Some even liken fertility treatments to cosmetic surgery. But ask the millions of couples desperately trying to get pregnant whether or not having children is a necessity. Why would they subject themselves to months or years of such turmoil if, to them, it weren't essential that they try?
Certainly, there are plenty of valid reasons while this secret exists, but it needs to end. Thirty years ago, breast cancer was where infertility is today -- women just didn't talk about it (a topic I touched upon in a recent blog post). There weren't countless support groups, fundraising walks, and an entire month enveloped in pink. Women battling breast cancer did so in silence and, in turn, many felt isolated and ignored. However, now because there is such an international dialogue about the disease, breast cancer receives multi-million-dollar grants each year in research funding and patients are inundated with an outpouring of support and understanding.
Other cancers, AIDS, and many other illnesses follow the same path from shame to global support and advocacy: Once people start talking about it, the awareness, funding, and answers follow. "The silence is one of the key reasons why the infertility movement is not where it should be," says Collura. "By people speaking out and letting the world know that these are real issues affecting real people, that would impact advocacy, public education, and public policy."
What will it take to bring infertility out of the closet, so to speak? Possibly it would help if more celebrities like Giuliana Rancic came forward and if the media started covering the topic more extensively (as SELF magazine did with a groundbreaking piece on the subject). Maybe we need thousands of infertility patients and advocates to come to Washington D.C. for their Advocacy Day on May 5th rather than a few hundred like in years past. Or perhaps we just need the domino effect -- once a few people experiencing infertility open up, more will follow suit.
I don't know what the magic ingredients are that will take infertility from an issue no one talks about to a banner "pink ribbon" type of cause. The bottom line is that far too many people are suffering. But by suffering in silence, the stigma persists and the advances we need to overcome infertility will never become a reality. As Collura points out, it starts with those struggling with infertility saying, "We matter."
And when they do, the rest of the world must start listening.
There were a lot of things in this article that really hit home with me. How many times have I, and so many others, avoided talking about IF? How many times have I wished there was more media coverage about IF, but done nothing about it? I realize that IF is very private, but it really makes me wonder what changes could happen if that wasn't the case. I'm not saying that everyone needs to come out of the IF closet or spend all their time campaigning about IF...I just wonder if there was a little more talk or a little more effort, if things would eventually change.
Unfortunately, there were quite a few negative and insensitive comments posted after the article. Some people are so convinced that IF is not a health issue; simply a lifestyle choice and that it is nature's way of weeding out the population. Of course, these are the people that don't have any experience with IF...it just goes to show how much more education and coverage about IF is needed!
Silence might be golden in some circumstances, but in the case of infertility it has been downright destructive.
Recently RESOLVE, one of the only organizations dedicated to infertility, made a bold announcement on its website: "People with infertility are being ignored." I always knew that insurance coverage for treatments such as in vitro fertilization (IVF) is scant at best, and that many doctors still don't treat infertility as a major health issue. I've learned that blatant misconceptions persist when it comes to our reproductive health. And it's no secret that the media doesn't cover this subject as often as it should.
However, what I didn't realize is that infertility patients' reluctance to discuss their struggles and advocate for change is directly preventing those affected from getting the support and funding they deserve. As Barbara Collura, executive director of RESOLVE, explains, "Infertility is not being discussed in the general public health realm -- it's not taught in health classes, it's barely touched upon in medical schools, and it's not a priority of any government entity. Yet how can we expect health care providers, educators, our government, and insurance companies to pay attention to infertility when the patients themselves aren't even talking about it?"
Why the silence? People battling infertility are certainly not alone -- a staggering one in eight couples face it -- yet many feel like it is an extremely personal matter not to be shared with anyone but anonymous women and men on message boards. Some say they feel shame for not being able to procreate or for having faulty plumbing, so to speak. Also, in our somewhat still Puritanical society, we've been brought up to believe that sex is a private matter. Discussing it in some circles, even when it pertains to a medical condition, is taboo.
Of course, not everyone feels that way. For instance, while plenty of celebrities would never admit having gone through IVF (even when so many give birth to twins in their 40s), Giuliana Rancic has helped break the mold by publicly sharing her fertility battle via her reality show Giuliana & Bill. "We had signed on to do this show and when we started having trouble getting pregnant, we decided we were going to be honest and reveal what was really going on," says Rancic, who suffered a miscarriage last year after undergoing IVF treatments.
The result of her candidness was both surprising and inspiring. "I started getting up to 100 emails a day from people telling me that I helped them because hearing my story made them feel less alone and ashamed," Rancic explains. "I was shocked by the fact that so many people go through infertility because so few talk about it. And while experiencing it myself has been more difficult than I could have ever imagined, I've found there really is a comfort in numbers."
However, Rancic is still in the minority: It seems that for most men and women facing infertility, it's easier to deal with something so emotionally, physically, and financially draining without having to field questions and opinions from every well-meaning friend, co-worker, or family member. Such comments like "Just go on a vacation, relax, and you'll get pregnant," or "You can always adopt," are far too painful to even acknowledge, so people figure that by remaining silent they'll avoid opening themselves up to such commentary in the first place.
It doesn't help matters that there's no general consensus on how to label infertility. In 2009, the World Health Organization officially defined infertility as a disease. Yet many individuals, organizations, and insurance companies still say that having children is a lifestyle choice and that infertility is not a serious medical issue. Some even liken fertility treatments to cosmetic surgery. But ask the millions of couples desperately trying to get pregnant whether or not having children is a necessity. Why would they subject themselves to months or years of such turmoil if, to them, it weren't essential that they try?
Certainly, there are plenty of valid reasons while this secret exists, but it needs to end. Thirty years ago, breast cancer was where infertility is today -- women just didn't talk about it (a topic I touched upon in a recent blog post). There weren't countless support groups, fundraising walks, and an entire month enveloped in pink. Women battling breast cancer did so in silence and, in turn, many felt isolated and ignored. However, now because there is such an international dialogue about the disease, breast cancer receives multi-million-dollar grants each year in research funding and patients are inundated with an outpouring of support and understanding.
Other cancers, AIDS, and many other illnesses follow the same path from shame to global support and advocacy: Once people start talking about it, the awareness, funding, and answers follow. "The silence is one of the key reasons why the infertility movement is not where it should be," says Collura. "By people speaking out and letting the world know that these are real issues affecting real people, that would impact advocacy, public education, and public policy."
What will it take to bring infertility out of the closet, so to speak? Possibly it would help if more celebrities like Giuliana Rancic came forward and if the media started covering the topic more extensively (as SELF magazine did with a groundbreaking piece on the subject). Maybe we need thousands of infertility patients and advocates to come to Washington D.C. for their Advocacy Day on May 5th rather than a few hundred like in years past. Or perhaps we just need the domino effect -- once a few people experiencing infertility open up, more will follow suit.
I don't know what the magic ingredients are that will take infertility from an issue no one talks about to a banner "pink ribbon" type of cause. The bottom line is that far too many people are suffering. But by suffering in silence, the stigma persists and the advances we need to overcome infertility will never become a reality. As Collura points out, it starts with those struggling with infertility saying, "We matter."
And when they do, the rest of the world must start listening.
There were a lot of things in this article that really hit home with me. How many times have I, and so many others, avoided talking about IF? How many times have I wished there was more media coverage about IF, but done nothing about it? I realize that IF is very private, but it really makes me wonder what changes could happen if that wasn't the case. I'm not saying that everyone needs to come out of the IF closet or spend all their time campaigning about IF...I just wonder if there was a little more talk or a little more effort, if things would eventually change.
Unfortunately, there were quite a few negative and insensitive comments posted after the article. Some people are so convinced that IF is not a health issue; simply a lifestyle choice and that it is nature's way of weeding out the population. Of course, these are the people that don't have any experience with IF...it just goes to show how much more education and coverage about IF is needed!
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